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Join Us in Making a Difference

Upcoming Events

Together, let's make a meaningful impact and bring hope to those facing Niemann-Pick Disease Type C.

National Niemann Pick Disease Foundation (NNPDF)

NNPDF Family support & Medical Conference
July 11-13, 2024

Location: Salt Lake City, Marriot City Salt Lake City, Utah

National Organization for Rare Disorders

NORD® LIVING RARE, LIVING STRONGER® PATIENT AND FAMILY FORUM
- June 7 - June 8 2024

RARE IMPACT AWARDS®
- June 8, 2024

Location: The Hilton Los Angeles/Universal City Hotel 555 Universal Hollywood Dr, Universal City, CA, United States

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